Charlie Gard’s Mother: “This Has Been Absolute Hell. We Have No Say in His Life Whatsoever”

Charlie Gard’s mother spoke out on British TV this week about her son’s condition and the helplessness she feels as a parent. Charlie is suffering from a rar

Source: Charlie Gard’s Mother: “This Has Been Absolute Hell. We Have No Say in His Life Whatsoever”

About Sue Rosenbloom, M.A., C.T.

Thanatologist: Loss and Grief Coach - My blog is for educational purposes only. I am not a licensed professional counselor - Bachelor of Arts in Human Studies - Marylhurst University (2007)- Certificate in Thanatology - Hood College (2008) Master of Arts in Thanatology - Hood College (2009) Certificate in Thanatology - The-Association for Death Education and Counseling (The highest level of loss and grief education). * Hospice, Alzheimers and Senior's Advocate * Former first responder for Trauma Intervention Program, Inc. (TIP) * Hospice and Bereavement Volunteer for Providence Hospice Bereavement Program * Association for Death Education and Counseling Member * National Alliance for Bereavement of Children * Hood College Thanatology Association * American Group Psychotherapy Association * Marylhurst Gerontolgy Association * Oregon Gerontology Association * Hospice, Loss, Grief and Bereavement Researcher * Creative Writer
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One Response to Charlie Gard’s Mother: “This Has Been Absolute Hell. We Have No Say in His Life Whatsoever”

  1. I’ve worked for 18+ years with families and trained the professionals who work in service to them on ICU units from myriad tragic and heartbreaking circumstances with impending death a certainty. Accepting the depletion of medical options is a painful but necessary reality for both families and physicians. However, if families have the resources and desire to take their loved ones home to die or pursue hope elsewhere no matter how futile…that is their choice and their dime quite frankly. Having also worked with hospice I can tell you that releasing Charlie to die in the comfort of his home surrounded by family without the necessary restrictions imposed by hospitals would be far more meaningful, empowering and healing for his parents, as they have pleaded for. It begs the question, why must any family plead for this? HealthCARE remains viable even when cures don’t exist. Enabling family agency during a crisis facilitates mastery over the powerlessness of looming loss and certainty for years to come that they sanctioned what was possible and right for THEM. Even if Charlie died naturally in the ambulance in transit on his way home or elsewhere, that might still be preferable to his parents than deliberate cessation of care on a unit. Aside from overreach, misguided patriarchy and possibly defensive medicine, I see no valid reason why this hospital is refusing discharge ‘Against Medical Advice’, dictating what should occur outside it’s four walls and increasing the agony for these people. Physician, first, do no harm.

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